After that I got, I, it was about in, in 19-, hang on a minute, 2001 I got pregnant again, slightly unexpectedly. Being generous and kind generally happens only when you're happy. So that just left the talipes. You could see her face, and the major aspect that was, that was the indication of what was wrong was the thickening at the back of the neck in this instance, which, when you're looking at a fetus is, you know, sort of half a centimetre thicker or not is completely immaterial to me, and would look like a completely normal neck, but from the point of view of the consultant was severely abnormal. The same anxious wait for a little, pathetic cry. So had to come back in a week's time for a scan, which again is quite a common thing I found out. If you are offered further tests, you will be given more information about them so that you can decide whether or not you want to have them. To help us improve GOV.UK, wed like to know more about your visit today. And how wrong could they be? ABDOMINAL CIRCUMFERENCE MEASUREMENT AT 20 WEEK SCAN. When I think about how long it took them to deliberate ultimately, maybe not, but it just felt like a bit of a fast food situation, didn't it? My mum arrived early to look after our son, and my partner and I got a cab to the hospital. So I sort of went home quite, fairly kind of happy and I, at, at this point I hadn't any idea things could go wrong anyway. The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. And they took us out of the scanning room, into a more quiet room while they typed up the report. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. We both thought we would like some good to come out of this horrible experience, so wanted to talk to somebody about the possibility of using the body for research purposes. And I'm glad I did and she's glad she didn't. We'd just spent some time away on a, on a summer holiday and come back expecting to have this scan and be told, 'All fine. Public Health England (PHE) created this information on behalf of the NHS. And they took me to another room and they explained that the baby had what they thought was ventriculomegaly or something. She describes having to make a . I think I was about 20 weeks cos they, the hospital I think did the 12 and the 20, that was their standard thing and, yeah, so I got the 20 weeks one. Dont include personal or financial information like your National Insurance number or credit card details. And it was then because we were at 20 weeks by this point, there was only fairly short window to actually, to get some more tests done, find out what the problems were, and then make any decisions that might have to be made. I don't know how we got through the next couple of days. You can change your cookie settings at any time. The scan looks for 11 different conditions in your baby and cannot find everything that might be wrong. If you think you may have a medical emergency, call your doctor, midwife or hospital immediately. Sam squeezed my hand and told me it was ok. I get terribly irritated by my close friends and family. At first the closeness came through a sense of guilt. Two days, after on Christmas Eve, (my 12 week date) I had more blood tests. I remember thinking, 'Gosh' I now know it was a girl, I didn't know that then, that, 'She looks just like her brother'. I remember thinking, 'that doesn't look quite right'. There is always a chance that a baby may be born with a health issue that scans could not have identified. It was, 'Oh we'll come back to that'. He looked excited. And my partner and I would have a completely different life from the one we'd imagined. When I told him what had happened, he refused to believe anything was wrong and said he'd sort it out when he came home. Many parents were shocked by findings from the 20-week and later scans. I had to stop myself from yanking out the needle. Thanks girls, it's amazing how protected our babies are in there isn't it?! By the time I left the hospital, I was in shock. And I went for, I went for a normal 12-week scan, at my local hospital and everything, they said everything was fine, there was no problem. or sort of light chat that we'd, we'd experienced before with previous scans. The first midwife seemed to understand what we were trying to say, and said she would ask the doctor to come and talk to us. And for that whole time, my partner and I were both crying uncontrollably. So we gave up and said we'd arrange the funeral ourselves. Eventually, the midwife said to us very sweetly, "I think we should deliver the baby now." For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. Spina bifida can usually be seen clearly on a scan and of those babies who have this condition, around 9 out of 10 (90%) will be detected. It is as though our pain means we've earned the right to be taken more seriously. Living in this world must be unbearable for them. I am a darker, harder version of myself. Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. 12/12/2012 22:41. My belly was growing and I was feeling great. We were convinced everything would be OK. He's now had the all clear and is wriggling round on . I didn't want to go through anymore scans. He started to scan me with a cold expression, then told me, "it didn't look good" and that "my womb looked raggedy". I'm trying to understand because I haven't seen a 3-D scan, what it tells the parents? It felt as if we had gone power crazy. But with time although we will never forget, I know we will be ok again. I tried to keep positive. The "why me?" And this baby sort of floated, and occasionally there was a slight movement, but it was very you could almost see that he was really poorly just from looking at the screen. At first, I still had to deal with the physical implications of having given birth. So she said, 'Come back on Monday. And again, you know, you read all the books and it tells you 'this is the diagnostics', but after a while you don't hear that inside your head any more No, no, no, I'm fine - because everything's perfect. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. But now that's changed. But my brain had been given a train of thought that was impossible to stop. You get extra care and monitoring as appropriate and baby is proactively treated. Away you go'. It is extremely rare for these pregnancies to reach term as they typically spontaneously miscarry early in pregnancy. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. The blood test confirmed it was twins. Thinking back, I don't know how we left without him. There are no known risks to your baby or the mother from having an ultrasound scan but it is important that you consider carefully whether or not to have the 20-week scan. I felt more informed, and I felt that that was what I needed in my head to see you know, that I've got to accept now that this, all these things are real on the screen and this was really my baby that's suffering all these things [sighs], but I was sad as well. It felt like a lifetime to reach our 12-week-scan. I wanted to be a passive patient while the doctor did what he had to do. 26/09/2019 22:46. At which point they turned round and said, 'Well, there is something very seriously wrong with the baby, we don't know exactly what, but you do need to have a more in-depth scan at your regional hospital to find out the detail'. But he was wrong. I want to enjoy my son again, without any reservations. The hormone levels had dropped, but they wanted to scan me again. You've had, you've had your Down's Syndrome check and that's okay. Trying to carry on as normal, working and putting on a brave face. The doctor explained the options I had to manage my miscarriage. But it was very evident. We must have had one before that as well, we must have had one before that, but it came back quite normal. Hugely upset that to think that the baby was so poorly. Wishing to be anywhere, but here being told the same agonising truth over and . The thing about that which I felt was difficult is that we could tell when being scanned that there was something very seriously wrong. I was then told yet again bad news. Never lacking a sense of the dramatic, it felt as if we shared the responsibility for the terrible, dirty act that we had committed. Instinctively, did it feel right? You know there's always that bit on the bottom of the thing, 'These are diagnostics, do not bring other children,' - blah, blah, blah.. it's not, you know, it's not a family outing kind of thing, but it feels like it. And everybody knows and everything is right. Thick milky discharge at 14 weeks.tmi pic attached. Sam followed and I broke down. Intellectually, I knew this was not the case. I give pregnant women dirty looks. So even if anomolies are found, they don't always mean a problem.. x. I had issues at the 20 weeks scan with both of mine. So he went out for a walk. We were denying him his life. It was a bit worrying but on the plus side I got an extra couple of scans and an extra couple of pictures. So I no longer trusted my instincts. Or, at the very least, heart problems. I went away and came back, and she couldn't get a good picture. Reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis or treatment from a qualified health care provider. So we went home really and I sort of had to think about it all night. Somehow, I walked from the sofa up to the bathroom and told my partner. As I say, I'm not a very nice person at the moment. So I trusted him. We'll make an appointment with the senior sonographer, the consultant at the local hospital, and she'll do your scan and she'll be able to tell you more things'. We just couldn't use the words. The nursery I had selected for our two-year-old son; my maternity leave; the bunk beds; the summer holiday suitable for a newborn baby. Again, we weren't understood. And with each one we had to have the same conversations. Your mind has closed to the possibility that there could be anything wrong. To comment on this thread you need to create a Mumsnet account. After the triple test you stop thinking, you stop thinking that anything can go wrong. All the hopes, dreams, and plans we made with our little bumps has been taken away from us. An hour passed and I started to panic. I felt empty, scared, guilty and incredibly heartbroken. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. I didn't really know what that was. It felt as if we'd gone underground, that we were part of the criminal fraternity. I had to take a tablet there and then, under the supervision of a nurse, to end the pregnancy. We had the 20 week scan yesterday and got some devastating news. Yeah - in, stomach, out. In most cases the scan will show that your baby appears to be developing as expected but sometimes a condition is found or suspected. But it is a soft marker for Edwards' syndrome. And my husband, we never got to sit next to each other in the consulting room, my husband was across the room from me, and I was sat next to the consultant, and we were laughing and joking with him about, you know, the home delivery, and everything was going to be, 'Are you still on for the home delivery?' And I can just remember flashing a look at you as if to say, 'Have I made a mistake here somewhere? It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. So carried on with the plans, and, you know, planning for the, another baby to come along and then we went for a 20- week scan which is obviously the big one and very exciting, seeing all the arms and legs and once again everything was going fine, 'Look here's the baby, here's the length of baby'. And nothing prepares you at all. Went back a week later for the scan and, you were with me for this one, weren't you? This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. The first result, which tells you if the baby has Down's syndrome, is ready in three days, but the other chromosomal problems cannot be eliminated for up to three weeks. I used to think the feeling of your baby kicking inside you and the sight of a foot poking against your skin were the most fantastic things in the world. Like many things, the theory is very different from the reality. Not marginalised into being a victim. Specialist scans are performed in specialist fetal units and if clinicians feel that there might be problems scanning will be done up to 32 weeks. Finally, Monday came and we went back to the hospital. unfortunately the 20 week anomaly scan can pick up serious issues, hearing heart beats at midwife appointment doesn't let us know what's going on inside the body in detail. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. I believed at this point I had miscarried, they wanted me to come back I'm for a follow up scan. Some people want to find out if their baby has one of the 11 conditions and some do not. It was over. I couldn't have the added responsibility for changing his mind. I felt I needed proof of what was wrong before I take such a huge decision and that I couldn't do it based on what someone had written on, on the paper. So it was, there was very, very little movement from the baby because I remembered first time round by that stage, you know, that the baby was quite big and it moved around a lot at a later scan. I can feel my child kick, it responds when he shouts at football - I mean literally, this baby used to dance around whenever he'd like scream at a goal - and there cannot be anything wrong with this child because it's part of us already. I want to be happy again. And shortly after that, that scan we'd finished and the consultant leant back and said, 'I'm afraid we have some problems here'. The pain was excruciating, but nothing compared to how I felt inside. No one else but my partner saw how similar he was to our son. . It was positive, and I felt elated. He was sure the consultant on Monday would see that the measurements were completely normal and that there was nothing to worry about. When he came back, he agreed on a termination. There was an extra digit on one of the hands. The week that followed was an agonising wait. I mean the lady who was scanning was very quiet for a long time. She brought up a picture of the heart on the screen. And before they gave me any of the results she asked a colleague to come and told me she wanted to check something, with a colleague, and by then I was getting very concerned because I'd never had that happen before. A long process of blood tests, scans, doctors and hospitals. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. Some hospitals do offer earlier anomaly scans of the baby, but they will not show as much detail as scans performed between 18 and 20weeks. 'Soft markers'. I tried to show him the notes and the photos. The same unique expression he had when he saw our two year old born. I thought surely everything is ok, as they couldn't detect twins the week before. The consultant at the time wasn't really that interested in that imagery. But on, in the middle of March, 10th March it was, we had a 20 week scan. They would then re-test me in two days time. I was another one who did get bad news at the 20 week scan. There was complete silence during the scan. He then told us what the prognosis would mean for the child. There's nothing wrong, you know, we've had all the tests, everything's fine,' and being very upbeat about it all. So it was just, we were coming up to the 20-week scan and I was just getting more relaxed, just actually starting to look at maybe baby catalogues or, you know, going down the baby aisle at the shops, which I'd always avoided.
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